KCH Model of care was a paper written and developed by Jane Mills PDNS and myself describing the model of care at KCH London. When I started out as a new nurse in post there was basically nothing out there for me to turn to in order to set up a nursing service. I struggled on for 3 years and learnt through clinics and attending patient groups what the person with Parkinsons and their families felt worked for them as far as clinics were concerned. So many People living with Parkinsons would report back that their clinics were a waste of time as they rarely understood what they were being taught as well as knowing very little about their Parkinsons. They were unable to make informed decisions about their care or left feeling more confused then when they went in .
From this feed back and through TheCureParkinsons Trust 131105 QoL Postcard for Field Test A4 full only_DRAFT was developed. This tool enables the PWP and their partners to decide their most dominant 3 symptoms that affect them most days and bring them into the clinician and chair their clinics. Clinicians cant mind read PWP symptoms even being a specialist in the field so I advice PWP to prepare for their clinics by using this tool or the NMS tool in clinics benefiting both the PWP and the clinicians.
When setting up a nurse lead clinic I suggest trying to use a spacious room as PWP struggle and feel uncomfortable in small spaces. Don’t clock watch if possible and keep the clock behind you. PWP are more relaxed and open when they feel they have time to talk and the clinician are listening rather than clock watching. Use tools to collect information as all your outcomes should be researched and able to be audited. Keeping a data base is advisable. Build a team of MDT specialist around you as a nurse as working independently is no use to you or the PWP. The role of the PDNS is often described as being the lynch pin to the service with the PWP and their partners being the nucleus of the circle.
If you use DAT Scans and MRI Scans in your service its best for you to explain the results of these along with the PWP which includes them in their pathway of care from diagnosis. It develops the role of the PWP being the expert from the start. Using the NMSQ or any other QOL tool along with the PWP develops useful conversation with auditable outcomes. Far more productive than just how are you or you are looking well.